invading my space
i balk at the intrusion
but nothing changes


It's been nearly a year.  Bob is no longer plateauing. So on the good side, he's not falling as much.  But on the other hand - that's probably because he can't stand anymore. 

We bought a wheelchair van (yesterday), and I'm getting used to new-normal.  I stopped blogging for a while - but not writing haiku.  The changes in Bob overwhelmed me and I couldn't write about it - but after last week, I am no longer going to hold everything in.

There are several things about MS that I hate.  I hate the bladder stuff.  I hate the mood stuff.  I hate the expense and the lack of autonomy.  I hate that people fall over themselves for him and create more work for me.  I hate not having a future to look forward to.

We leave for Pittsburgh tonight - a nice weekend away with a shit-tonne of planning.  I need a break.